Yesterday, Luke was evaluated by a pediatric neurosurgeon. We got additional x-rays and a CT scan done of his neck. After looking at those, the dr said that Luke will need a surgical intervention to protect his spinal cord from any damage that may occur from the instability of his c1c2 vertebrae (a common occurance in children with Luke's specific form of dwarfism). Before we make any decisions regarding the type of surgery or when the surgery will be, Dr. Rozzelle first wants Luke to have an MRI. Dr. Rozzelle's nurse is trying to schedule the MRI for June 24th (we will be going up there for an orthopedic evaluation on that day, already). Luke will have to go under general anesthesia for the MRI because the MRI takes 30-45 min and Luke has to be still that whole time. After the MRI, Dr. Rozzelle will look at the results and then we will discuss what he thinks is the best course of action for Luke.
I'll try to explain the problem with Luke's neck... Basically, because his c2 vertebrae is missing the odontoid process (think of a little 'post' that holds the c1 in place) the c1 vertebrae is moving around and could severely damage his spinal cord. This particular area of the spinal cord, if damaged, could result in not only paralysis of the legs, but his arms, lungs, diaphragm, bodily functions, etc would be affected.
I would like to ask you to please pray for Luke's neck, the wisdom of Dr. Rozzelle (who has only had one other patient who has had Luke's condition- meaning SEDC- and hasn't had to do any surgery on this kid yet. However, he has done c1c2 fusions many many times), and for Gary and me to make decisions for Luke's health and protection.
Gary and I were hoping that we would be able to just monitor this condition, that it wasn't this serious. We are both a little overwhelmed and discouraged by the news. However, we know God is in control. He has taken care of Luke from the beginning and will continue to do so, of this we have no doubt. We are praying for a miracle. We are praying that God will heal his neck. At the same time, we know that His will will be done and He loves Luke more than we do. He will do what is best for Luke and we trust in Him to take care of Luke in every way.
Thank you for praying for us. Thank you for loving our family and our Luke. May the peace and love of God sustain you.
Our prayers are definitely with y'all and Luke as well as the drs. Our hearts and thoughts are with you guys as well. Please let us know whatever you need for the upcoming events.
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